I was diagnosed with PCOS almost 6 years ago. I was only 20 years old when my gynae finally took all the required test from sonars to blood test, when she finally called me back for my results and said you have PCOS – Polycystic ovarian syndrome. She partially explained what it is and how it could affect my health without telling me how it will affect my future. She started calculating my BMI body mass index saying that studies say that PCOS is genetic but sometimes my diet and body weight play’s a huge impact. Being young and very petite, I honestly didn’t understand what she was going on about. I weighed +/-45-48kg which made no sense to her why I hadn’t had my periods in the past 18 months since I had stopped taking recreational drugs due to other health issues. She advised me to continue exercising and to try a Mediterranean diet.
Fast forward 4 years , at 24 and a newlywed, the stress, excitement, mixed emotions meant no periods again until I learned that I was pregnant. I had my first miscarriage then my fetus was under 6 weeks. Doctors came in and told my husband and I that it was normal and it is usually referred to as a spontaneous miscarriage. My husband and I went back home to deal with our loss. This was when he decided to start researching more then it hit him that I had once said that I have PCOS. He googled more about it and learned that many women with PCOS cannot conceive and if they do they are at a high risk of miscarrying because of the influence of hormones that are produced by ovaries and help sustain early pregnancy. They also have an increased chance of developing gestational diabetes, pregnancy induces hypertension and premature delivery. When I started feeling better he started explaining this more and more to me. We changed our gynecologist to get a different perspective of things. Things went well until I fell pregnant again in December 2016 and miscarried in January 2017. The doctors came in and told me to consider myself lucky to have PCOS and be able to fall pregnant. In my head all I could say was really falling pregnant and losing the child before it’s even able to kick is not luck.
From that day I read more into PCOS finding out new things about PCOS, meeting more young women who have suffered the same, if not worse experience through their PCOS journey. That’s when I started p.c.o.s_you_can after realizing that many young african women fear coming out and telling the world that they have PCOS. Scared of being judged or ridiculed by peers or disowned by family members who still believe in the stigma that states that women place is in the kitchen and to bear children. Not knowing the monster that there daughters or sisters are fighting each day of dysmenorrhea, obesity, infertility, depression.
I chose to stand with the helping hand of my husband and family, this made me see the need for an information platform a support group for young african women that are fighting this battle alone.